Elle May

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Thursday, 23 July 2015

An NCS sufferers mini guide to summer.



I'm sure most of you who suffer from NCS (neurocardiogenic syncope) are aware of how hard it is to function in the summer, it's the worst time of year for me personally. There are tears, anger and me eventually accepting there is no stopping my condition, I just have to push through it as best as I can, this is just a short guide to how I deal with summer:

1. Keeping hydrated is a must. If you're not hydrated you're going to feel worse then ever. I normally buy myself a drink or carry a drink with me all through out the year but in the summer I end up needing more fluids than ever, So please don't let yourself get hydrated, keep your fluid intake up!

2. Be close to somewhere that has seats/bench. I'm terrible for sitting down all the time people seem to think i'm lazy or being an idiot just because I can't walk up a hill without fainting or down a street without having to cling to a wall. This is my reality, if I don't try and stop myself fainting I may end up seriously hurting myself on the fall down, which I have done many times, so please don't go judging me for having to rest.

3. I know a lot of people as well as myself suffer from blood pooling. I get it badly in the summer. My legs swell up so big which makes them sore and achy, wearing compression stockings are your best bet for this, I know they aren't pretty and don't go with your outfit but they do help. I end up having to keep my legs and feet elevated to help the swelling and my BP.

4. If you wake up feeling dizzy don't even attempt to do anything. Sounds lazy but there is no point making it worse. I would rather be able to have enough energy to eat during the day than having to sleep most of my day away because I pushed myself.

5. Don't stress yourself out over mess, the mess can wait. Your health is more important than that little bit of hoovering that needs to be done. You don't want to start the cleaning only to end up with a bigger mess than when you started do you? Put your feet up, watch some TV or even have a little snooze instead.

6. If you can't get out of bed, don't attempt it! Lay there until you can manage it, grab yourself a snack and some water or get someone to bring it to you. I sometimes end up feeling really sick due to my NCS but when I don't eat properly it doesn't help me one bit.

7. Cooking is a big NO. You're hot already so why stand over a cooker making yourself hotter and risk harming yourself? Know your limits and know when to stop pushing yourself. If you have people who offer to help, let them do it, they're not trying to make you feel any more less of a person. 

Last year sometime I did a post similar to this where I spoke about how summer makes me feel whilst having NCS which you can read HERE.

2 comments:

  1. Cooking during the summer with any form of dysautonomia is the WORST. I have both POTS and NCS and in the summer, I drink a lot of smoothies and eat a lot of prepared foods. The prepared foods may not be the best for my health but at least they don't make me pass out!

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    1. I should probably try having prepared foods in the summer, I do enjoy cooking but it's impossible sometimes, lucky for me my parents cook or my boyfriend does x

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