Living with NCS - how I cope in the summer.

I wanted to do this post as I'm always asked what do I do in this heat when it comes to my condition? Well first up it's no walk in the park, it's like I'm at war with my body an in the end I lose. I have terrible days where I just want to sleep for hours because I can't move around an I feel like I will just fall flat on my face from fainting, other days I tell myself today will be a good day but that's not how it goes, every day is a struggle whether it's summer or winter.

Summer is the worst time of year for me, the heat effects me more than the cold does, I swell up my legs go bright red and I can't keep my dizziness or fainting under control, walking up a tiny hill is near to impossible as it feels like I'm climbing a mountain. I want to be able to do normal stuff and enjoy the summer but I just can't. So I make sure I have a drink with me and food that's high in salt because my NCS causes low BP. I make sure that I don't have far to walk and that I have somewhere to sit close by. Keeping my feet cool is something I have to do, they swell even more if they are too covered up as you can see from the picture below.


I can't begin to count how many times I have cried about feeling too dizzy or that I just can't cope with the heat. I sound so dramatic but I cant sympathize with pregnant women, I feel your pain when it comes to the heat! Sometimes I wonder if I should just stay in my room all day instead of going anywhere, but alas I can't do that I have a life. So the real answer to this post is I don't cope in the summer in fact I just end up looking like a whale because i'm a swollen hot mess. I have my appointment on august 12th and i'm hoping that it will go well, Although having to wait to be seen last because my last name begins with 'R' makes me feel like i'm at school again. I still have people asking me if i'm feeling better yet or that I will be fine, it's pointless trying to explain to them why I won't get better and why it won't be fine, it will just fall on deaf ears. Each month when my period is due (sorry tmi) I feel lower then low, my NCS plays up a lot that time of month and it doesn't help when they have started to become unpredictable, normally I can track when i'm due on with my apps but lately that's been near to impossible so I can't tell if I'm going to be even worse because of my period or not. 

I'm still determined to finish my '10 things to do this summer' list, it will happen!


No comments